Mario had blood work done again and unfortunately his INR (blood coagulation) isn't great so they're making him go in for another Vitamin K shot today. The nurse/xplant coordinator said that when she recalculates his PELD score he is now a 10, but this is without a new height and weight...if he has gained more weight (which I believe he has) the score might not be that high. We will get an official recalculation on 30 October when we meet with the nutritionist, surgeon, etc. again. We have his normal 6 month check up with the pediatrician tomorrow, so he gets another round of vaccines. The more vaccines we can get in him before xplant the better - so this is a good milestone. The next major one would be his 12 months. That's when you get mmr/varicella. These can't be given post xplant (live viruses are a no no once he's on the immunosupressents). Besides having to get multiple shots this week, he's doing well. He's eating more solids and seems to only like orange foods. We find this funny since he also has a VERY ORANGE vitamin supplement that he gets every morning...he has turned his nose up at apples, bananas, peas but likes carrots, sweet potatos and peaches... Go figure.
1 comment:
Good for people to know.
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