Tuesday, May 27, 2008

Riding forward!

Mario gets to face forward in the car now...since he is over 20lbs. YAY.

Wednesday, May 21, 2008

"Look at my cool boots Mom!"

Tuesday, May 20, 2008

Into Everything...

"Look Mom! I got all my toys out of the box and spread them around the living room. Isn't it cool!?""What can I find to open, spill, or take apart next?"

Friday, May 16, 2008

Mario had labs drawn this morning. Things are looking pretty stable. I have a chart. The yellow, tourquise and red lines are the liver function things that we want to see stay down... notice how high they got with each surgery and during rejection.

Thursday, May 15, 2008

Wednesday, May 14, 2008

We had clinic today. Mario's labs are looking good and he gained weight. The doctor agreed to let us skip clinic Thursday (we have to do labs but don't have to come to clinic) so that's 56 less miles of driving this week (labs are at 7am and clinic in the afternoon so two trips in). He'll be back for labs and clinic again on Tuesday so they are still keeping close tabs on us. Best to all! Looking forward to some summer weather this weekend 80's in Seattle FINALLY.

Monday, May 12, 2008

Thursday, May 8, 2008

No more yellow.

Here's Mario today, playing outside the pharmacy window while we wait for his medicationHere is Mario around Christmas time, just after getting listed for a liver transplant...yellow

Wednesday, May 7, 2008

Update from Clinic Tuesday, 5/6

All is well. Liver Function labs all came down nicely. Mario was bouncing around, smiling, laughing during the appt making everyone smile. His weight gain is in question, but I think because of using different scales, sometimes weighing him naked, sometimes with a diaper, last week he had his dressing on his incision, etc. Now that we're at clinic 2X/week we should get consistency and track his true gain. He's been eating a lot, so I expect gains when we check him tomorrow. We seem to be getting close to the right levels on his immunosuppressents, vitamins, etc. A few more weeks of monitoring those and we should have a nice routine down. We'll continue to have clinic every Tue and Thu until then. Then, they'll start to decrease our visits to just weekly, eventually monthly...

Also, Eva picked and brought flowers for Nurses week which is 6-12th of May.

Sunday, May 4, 2008

He's home, lots of appts this week and I'm starting work again on Tuesday so we'll be busy for sure! But, he looks great and is doing fine. Will update this week as we monitor his lab results.

Friday, May 2, 2008

Plugging along with the steroid treatments. He's doing great, eating well, liver numbers coming back in line. They gave us a "pass" from the hospital 1-7pm yesterday and today so we got to hang out at home as a family for a bit. We hope to come home tomorrow after the morning dose.

Thursday, May 1, 2008

One "good" side effect of the steriods is that they make you hungry...Mario has no issues with eating!