Garden of d'Lights December 2010
13 years ago
Mario was born 4/25/07,diagnosed with Biliary Atresia 6/26/07. BA is a disease (~1 in 15K births) that causes inflammation/obstruction of the bile ducts resulting in back up of bile in the liver which destroys the healthy liver. 7/1/07, Mario had a surgical procedure called a Kasai and was added to the Liver transplant waiting list on 12/4/07. He received his first gift on 3/23/08 but was relisted due to a clotted hepatic artery. He received his second gift on 4/14/08. This is his story...
4 comments:
He's standing!! He will be cruising soon, I am sure.
Mary
He's standing!
Fantastic!
Jordan
Phoebe,
I have been reading through your very informative and encouraging blog, as my nephew just had a Kasai today for BA, and I just wanted to let you know how helpful your story has been. I am so glad to know that Mario is thriving and doing well. He is absolutely adorable! My brother and sister in law are new parents and are obviously very worried about their son, Sinjin. If you have any words of advice for them or for me as a supporter, please send them my way. As you can imagine, my whole family is struggling right now and just hoping that Sinjin will be another success story and be able to live a normal, heathy, and happy life. Thanks again for sharing your story about this rare disease. I will definitely be adding myself to the donor list.
Sincerely,
Elisha Sandhu
esandhu@hotmail.com
Happy Belated Mother's Day Phoebe!!!!
Erin Duff.
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