brief update...

We're still home, happy to get back to some normalcy. Mario is fine...except lately, he is extremely itchy. See, the bile salts cannot get out of the liver through the damaged bile ducts so they start to build up and come out through the skin. He is constantly rubbing his eyes, tugging his ears, nicking his skin on his face until he bleeds. We cut his nails constantly to avoid this, but lately it has gotten worse. Diane (the nanny) has been wonderful about giving him mid day baths to freshen him up and give him a few moments of comfort. My smiley smiley boy has more and more fussy uncomfortable moments, minutes, hours. Breaking my heart to see his discomfort. He still has great moments, days, smiles. We cling to those.