Sunday, March 23, 2008

"back-up" offer

545PM - we're admitted, did labs, got an x-ray, got an IV...Mario is finally sleeping. Now we wait.

130PM - Well, we're going in at 3pm. Apparently the recipient ahead of Mario is a liver-bowel recipient and since the organs haven't been procured yet, there is a possibility that the bowel won't be in good condition? So, that means Mario has a reasonable chance of getting the liver? This is all so new to me. I'm thinking about the kid who needs the liver-bowel and is actually ahead of Mario. I'm thinking about the donor, sitting on life support somewhere while the paperwork gets figured out. This is all so surreal. Updates tonight when we know more...

9AM - Nicki called to tell us there is "enough chance" that we should admit Mario this afternoon so we can wait on standby at the hospital. So, we're planning to wait overnight at the hospital.

7AM - Israel and I received a call around midnight last night from Mario's transplant coordinator. She was calling to check Mario's condition, health, make sure he doesn't have flu or fever because we have a "back-up" offer. Meaning, there is a liver, another kid ahead of Mario is going for surgery, but if for some reason they turn out not able to have the surgery, Mario would be next. They'll call this morning to let us know. Most likely outcome is the first kid gets a transplant (and probably needs it more than Mario right now). But Mario does need his and this tells me he is toward the top of the list... If we're "back-up" today, we could be "it" someday soon. I'm pretty calm about it now, but when the phone rang and Israel said "oh hi Nicki" I started throwing things in a bag, grabbing socks/shoes...Nicki doesn't call at midnight unless something is up...(Nicki is our transplant coordinator).

Other news from this week I forgot to add:
Mario's 1 year check-up is coming up in a month. We've been told NOT to move forward with any "live" vaccines...this means no MMR or Varicella (chicken pox) vaccine for Mario. We sort of thought this would be an attainable milestone, but getting the live virus in his system means he would need to go 'inactive' on the transplant list for 6 weeks so the docs have said not to. They want to keep him active...so do I, don't want to miss a liver if one comes!

Happy Easter all! There is bunny poop in my yard leading somewhere...Eva will have to help me find the trail when she gets up.

3 comments:

Scheri said...

This is such exciting news! We are keeping you in our prayers and will be checking in often. We send our love!
Scheri & fam

Anonymous said...

We just read the post and my heart is thumping so hard. I can believe it about your mixed feelings. Saying big prayers and keeping you all in our thoughts. Will be checking this blog hourly for updates!!

All our love, Mary and Jody

Anonymous said...

Mary just called to let us know you're at the hospital! What great news! We're sending Mario lots of love and prayers...

Standing by in AZ...Emma and Leigh