Thursday, April 10, 2008

Better evening - Better day - PELD 40

The team asked for more exception points so Mario is listed at 40 (that is the top with status 1A and 1B the only thing ahead of him, those equate to acute liver failure). Hopeful that we get an offer in the next day or so, if not Israel is moving forward as planned for surgery. Mario just ate some ice chips and is chilling in front of another Elmo DVD.
Afternoon: Mario had a bath, changed his bedding, got up and snuggled with me this afternoon for about an hour. I even got him to smile and laugh a bit. Good for the heart! I think he feels better today so hopeful that we're staying slightly ahead of the bacteria. The nurse and I were able to get this photo of him smiling.

Morning: Mario had a better night last night, no spiking fevers. The cultures still grew though and this morning his white blood count is back up. Israel is meeting the surgeon that works with Reyes at the UW tmrw morning and we'll get things scheduled very soon. Israel is handling everything very well, such strength. He gave me a chuckle yesterday because he had to go get a hair cut so he would start with a new fresh cut before being in the hospital for awhile. :) Also wanted to say THANKS to everyone for your offers to help! I am on email most of the day, so I'm coordinating things that way. Know that I'm reading your notes even if I don't respond. I am relieved to have such a great support system out there ready and waiting to step in. You guys are all amazing.

10 comments:

Jennie Moore said...

Just think of us all as TEAM MARIO, your own reserve army of helpers, ready to jump in at a moment's notice :)

Guadalupe Araujo said...

Phoebe, soy la tia de Israel y lamento no poder escribir el inglés. Les mando saludos con amor y deseo sepan que aun estando lejos, pedimos por la salud de Mario. Estamos con ustedes.

Con amor
Guadalupe Araujo

Scheri said...

We are thinking of you guys. You are amazingly strong parents! Wish we were closer to help out, but we'll have to just keep sending our positive thoughts and prayers for now. We send our love! Scheri & family

Unknown said...

He has a beautiful smile!

Anonymous said...

I'm with Jennie!

That smile is like fuel for the spirit!

Go TEAM MARIO!

xo, smp

Phoebe said...

tia guadalupe - entiendo todo...gracias!

Anonymous said...

What a beautiful picture!!

Mary

Anonymous said...

Glad to hear of the improved day. Mario will have another donor soon.

Anonymous said...

It is so nice to see that smile! Erin Duff.

Scheri said...

We are praying for another donor in the next couple days! It is great to see him smiling. We send lots of love your direction!! Scheri & family