
8:00AM We got the breathing tube out last night so he's breathing on his own again and comfortable, on pain meds again. Sort of like starting over and trying to make daily progress toward healing and eating.
Mario was born 4/25/07,diagnosed with Biliary Atresia 6/26/07. BA is a disease (~1 in 15K births) that causes inflammation/obstruction of the bile ducts resulting in back up of bile in the liver which destroys the healthy liver. 7/1/07, Mario had a surgical procedure called a Kasai and was added to the Liver transplant waiting list on 12/4/07. He received his first gift on 3/23/08 but was relisted due to a clotted hepatic artery. He received his second gift on 4/14/08. This is his story...
6 comments:
Poor little guy - kind of like taking two steps forward and three steps back! I hope that we see that wonderful Mario smile again soon. Hang in there and don't forget to breathe....
Love,
Emma
Bless that strong little boy and his parents. We are sending our love and strength to him and you. Love Sarah & Fam
Poor little guy looks so tired. Can't blame him. Glad he is off the breathing tube.
I am making a big huge batch of pozole today. Call me if you want me to run some over to the hospital for you guys (or where ever).
Lots of love, Mary and Jody
I'm thinking of you all constantly and sending all my strongest positive thoughts. Lots of love, Jennie
Hello Phoebe & Pee Led, I'm checking your blog constantly. I wish we were closer & could do more than send tons of love & positive wishes for all of you, esp the little beauty. He is so cute. I just cannot imagine how hard this must be for you. Such a long road. You all must be so strong, not to mention exhaustd. I hope all news is good from here on in. Lots of love Tam xxoo
We are keeping up the good thoughts! Hope Eva has a good time at the birthday party! Hugs and kisses,
Mary and Jody
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