Wednesday, April 2, 2008

APRIL is NATIONAL DONATE LIFE MONTH (100th POST on Mario's Blog)


Mario was able to eat 3 ounces of formula last night. This morning, Israel said he is not hungry. He is still on the IV nutrition, so this is understandable. The nurse practitioner said if the night and morning went well that Mario could try some cheerios today. I am hopeful that once he has had some real food and proved that his little system is working they will let us bring him home.

Longer term impacts of the hepatic artery are still not known. Mario is relisted and his PELD now calculated based on his liver function labs (6 currently in range of -10 top 40). They will watch closely for bile duct issues, regular ultrasounds will show any inflamation (which would lead them to do a a stent). We also added ursodiol (bile salts) to his peds yesterday to help make the bile flow easier/thinner so that it won't "sludge/clog" up the ducts. Time will tell...

Funny story, I found out that URSO means Bear because Ursodiol is "bear bile" - in the US we use a synthetic form, but apparently this was a discovery in Asia where it was found that people hunted bears for their bile which they took to assist with liver function!

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